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Fear and Denial of Death
by David Wendell Moller
 As
enormous community effort goes into cleaning up areas of pornography, litter,
and dirt, such as in the recent transformation of New York City's Times Square
area, modern society spends considerable effort on disinfecting the experience
of dying. This inclination to hide and exclude death from everyday social
activity is supported by the transfer of the place of death from home to the
hospital.
During the second-half of the twentieth century the burden of care, once
assumed by neighbors, friends, and family, was passed onto strangers and medical
caretakers. The new sites of death which emerged, most notably the hospital and
long-term care facility, enabled the removal of unpleasant and horrifying sights
of the dying process from ordinary social and cultural experience. This
transformation, whereby death was sequestered and institutionally confined, was
attractive to a culture that was increasingly fearful of dying.
In the hospital, dying is removed from the moral and social fabric of the
culture. It becomes redefined into a technical process that is professionally
and bureaucratically controlled. The horribleness and enormous suffering of
dying is banished from public visibility as it is isolated within the
professional, technical confines of the hospital. It is also important to note
that in this way the experience of dying has become both medicalized and
sequestered out-of-the-way. It has been argued that the medicalization and
isolation of dying are forms of death denial. Indeed, if we examine the way
dying and death are organized in the hospital culture, a clear pattern of closed
and obscured death awareness emerges.
In the modern context in which dying has lost its meaningfulness, death is
viewed as failure. This fact helps explain the great sense of shame and
humiliation that dying persons and their loved ones feel. In addition, many
physicians view death as defeat and failure on both a personal and professional
level. As long as dying is seen as shameful and death is viewed as failure, open
and honest communication will be stymied. Simply, no one likes to talk about
their shortcomings or failures. These, instead, are remanded to the isolated,
invisible realm of our collective human experience. That is to say, they are, in
fact, denied.
In the current cultural and medical framework, silence surrounds suffering,
dying, and death. These keenly felt human experiences are plunged deep beneath
the surface of everyday cultural activities, becoming concealed and privatized.
Norms and rituals that once helped to sustain and guide persons through the
dying process have vanished. It is precisely this devaluation of dying as an
important cultural experience that has subsumed the management and control of
dying in the technological, medical model. The crucial point to be made is that
cultural meaninglessness prompts widespread avoidance and denial, and that the
cultural campaign to deny death is waged largely within the strictures of
technological medicine.
Yet, despite the widespread cultural inclination to avoid open confrontation,
there may be reason to believe that death is not actually denied as much as some
have claimed. In the first place, death has been a topic of increasing attention
in academia and in popular literature. Scholars who have written, during the
past two decades, about the American ways of death denial have contributed to a
growing body of professional literature. The presence of this literature, some
of it even publicly visible on the shelves of bookstores, mitigates denial.
Slowly but surely, thanatology courses on college campuses began to emerge.
Textbooks began to proliferate during the 1980s. Movies and plays began to
tackle the culturally taboo topics of suffering and dying. Self-help and support
groups have burgeoned.
An entire genre of popular, self-help literature on grief has emerged -- some
of which, ironically in this age of denial, became best sellers. More recently,
newspapers, television, and magazines have catapulted Jack Kevorkian into the
mainstream of cultural conversation. National Public Radio has produced an
excellent series on end-of-life care. Funeral homes advertise in the Yellow
Pages, and more recently have advertised their services on the previously
forbidden medium of television. A "dying well," palliative care movement is
beginning to take form within the profession of medicine. Death, it seems, is
slowly creeping out of the closet and assuming a somewhat visible status in an
otherwise death-denying environment.
Thus, it would appear that the American relationship to death and dying is
changing. Avoidance and denial seem to coexist with a newly fashioned thrust
toward openness. The evolution of this relationship between "avoidance" and
"acceptance" requires further contemplation. The key point to consider is
whether or not the thanatology movement, with its focus on dignity and openly
acknowledging death as a vital part of the human experience, represents a
transformation of attitudes or is a recasting of the American framework of
denial into a new form.
In primitive societies, ritual and ceremony were heavily relied upon to
shield individuals and their community from evil and death. These rituals were
connected to the ways of life and provided for cosmic meaning to suffering and
the end of life. These rituals eased the terror of death, and enabled
individuals to confront dying with courage and reassurance throughout the ages.
Thus, the seeming absence of fear was in fact a reduction and control of fear by
cultural intervention.
Traditional rituals and meanings generated an atmosphere of openness that
eased the terror of death and offered solace to dying individuals. According to
Becker, however, the terror of death would not remain submerged indefinitely. It
would return with a fury if traditional rituals and meaning dissipated, as he
argues is the case in the contemporary world. E. Becker (author, Escape From
Evil and The Structure of Evil) argues that modern rituals have become hollow
and unsatisfying. As a result, modern individuals are deprived of stable,
meaningful life rituals, and have become increasingly "confused," "impotent,"
and "empty" during both their lives and deaths.
In light of Becker's criticism of the organization of modern life, it is
important to pose the following question: What is it that makes humanity empty,
confused, and impotent in the contemporary setting? His answer and mine are
quite similar. It is because the meanings of life and death in the
materialistic, technologically driven society have become shallow, thereby
precipitating enormous insecurities and anxieties. One does not have to look too
far to see how complaints of personal unease and worry permeate the culture.
And, this widespread base of anxiety in living becomes exacerbated into a deep
dread and anguish when individuals are forced to confront the end of life.
According to Becker, greed, power, and wealth have become the modern response
to vulnerability and insecurity inherent in the human condition. They provide
for a base of honor in our materialistic society, and generate an illusion of
omnipotence and immorality. Becker takes this argument to its logical extreme,
and asserts that the dread of death and emptiness of life in the twentieth
century have been responsible for cultivating unprecedented evil through the
pursuit of greed, power, and the associated development of destructive
capabilities.
Thus, for Becker, the stupidity and inhumanity of humanity lies in the nature
of our social arrangements. In the modern context, new patterns of death denial
have emerged and have become dangerous and dehumanizing. Up to a point,
traditional cultures creatively designed rituals to "deny" death, and these
rituals enriched the life of the community. In the absence of meaning systems
and rituals, modern society has exploded onto a dangerous and irrational course;
shallowness and emptiness have created a crisis of legitimacy.
In this regard, the argument of Becker is remarkably similar to Moore and
others who have made the case that one of the great afflictions of modern life
is spiritual emptiness and soullessness. Narcissism, self-seeking materialism,
and heroic use of science and technology have become prominent forces that shape
daily life. In this environment of self-glorification, material gratification,
and extraordinary technological achievement, suffering, dying, and death are
pushed to the periphery of cultural experience. Individuals are seduced into
believing the illusion that, in this cultural context of denial, the facts of
death and suffering are inconsequential to their daily, personal lives.
Materialism is a prominent value in American life. Becker makes the argument
that the evolution of capitalism as an economic and social system is a modern
form of death denial. That is to say, in capitalism it is through the thrill of
acquisition and the pursuit of wealth that human frailty is overcome. Power
accrues as wealth and possessions amass, and wealth endows immortality as it is
passed on to one's heirs. Narcissism, another prominent fact of American
cultural life, is also related to the denial of death. In an age of
individualism, we become hopelessly absorbed with ourselves. Although we know
that death is an unavoidable reality, narcissism facilitates the self-delusion
that practically everyone else is expendable, except ourselves. In this era of
individualism, the death of oneself becomes increasingly inconceivable. When one
matters more than anything or anyone else, self-absorption does not allow for
the possibility that one will no longer exist. In this way, the deeper we plunge
into narcissistic, self-admiration and idolization, the more we become oblivious
to our inevitable fate. As a culture, the more oblivious we become, the more
unable we are to face up to the facts of death in our daily activities. Death is
accordingly hidden and denied.
Thus, the social organization of modern life precipitates widespread oblivion
and denial:
Modern man is drinking and drugging himself out of awareness, or he spends
his time shopping (or admiring and entertaining himself), which is the same
thing. As awareness (of our common human condition) calls for types of heroic
dedication that his culture no longer provides for him, society continues to
help him forget [E. Becker/ Escape From Evil, The Free
Press, New York, 1975, pp. 81-82].
Fear of Dying or Fear of Death?
There is a difference between fear of dying and fear of death, but the two
are generally lumped together in the literature. It may very well be that modern
individuals do not fear death as much as they fear dying. In some cases, death
may even be seen as a welcome release from intolerable suffering, looked forward
to, or actively sought in order to relieve suffering.
In a culture where systems of support are fractured and dwindled,
individualism is a prized value, and technology is a dominant force, the great
cultural fear of death may more precisely be a fear of dying -- in isolation,
indignity, and meaninglessness. It may be that while death itself does frighten,
greater terror resides in the ways of dying that are presently so undignified
and dehumanized. The denigration of personhood and dignity, coupled with
unrelieved suffering, may be what is most intolerable about death in modern
society. Thus, it is not necessarily the ending of life that precipitates the
most fear. Rather, it may be the way in which life ends.
The decimation of personhood and dignity are primary sources of worry and
frustration for dying persons. The fear of dying is intensified because dying
persons are defiled, stigmatized, and relegated to the role of second class
citizens. Thus, on a societal level, fear and denial do not mean the complete
avoidance of death, but more correctly refer to the medicalization of death
which has redefined the dying process into a low status, technology intensive,
and potentially contaminating situation that needs to be contained and
sanitized.
Dying persons create a problem for the culture and the practice of medicine
by their lingering, often refectory pressure. This lingering is typically full
of chaos and suffering which are inherent to the messy, ugly image of
contemporary death. Even the very term lingering, which would have been
inapplicable to the life experience of dying persons fifty years ago, carries a
negative, frightening connotation. Yet, the term itself offers insight into the
nature and course of the dying experience in our technologically dependent
culture and medical systems.
Societies, even modern societies, do not entirely deny death. Rather, they
organize for it in ways that exert forms of social control. They sanction
different kinds of myths, rituals, and strategies that determine the nature of
death and set in motion culturally validated processes of conflict,
reintegration, and adjustment of roles. In the process of organizing for death,
modern society seeks to control, manage, and contain the process of dying in
ways that least disturbs the functioning of the ongoing cultural and social
systems. Thus, although I have used and will continue to use the term denial in
describing the modern ways of death, I use it in this sociologically qualified
way. Death is not, nor ever has it been, produced out of existence. Rather, it
is "denied" by social and cultural forces in that it is restrained, managed, and
kept under control.
In this regard, when we reconfigure our contemplation of mortality, from the
all encompassing concept of denial to the more specific concept of controlling
and containing death, the seeming contradiction between America's orientation
toward death-denial and the recent movement toward death awareness can be
readily reconciled.
The pioneer of the death-awareness movement is Elisabeth Kubler-Ross. With
the publication of On Death and Dying in 1969, she brought the issue of death
out of the closet and into the mainstream of cultural conversation. Ironically,
in a culture of "denial" where issues of death and dying received such scant
attention, her book received widespread recognition. It begins with a tone of
lament in which she criticizes the technological underpinnings of modern death
-- loneliness, mechanization, dehumanization, and impersonalization. In fairly
straightforward language she portrays how gruesome dying could be, and how
medical treatment of dying persons is often missing compassion and sensitivity.
She contrasted how dying persons may cry out for peace, rest, recognition of
their sufferings, and dignity, but receive instead infusions, transfusions,
invasive procedures, and technologically-driven plans of action. Her contrast
struck a cord with the American public, which was becoming increasingly worried
about the indignities in dying.
Throughout her book there is reference to the idea of death-with-dignity. She
zealously advocates the proposition that dying need not be something terrible
and tragic, but could become a springboard for courage, growth, enrichment and
even joy. She offers a rather uncomplicated view of the serenity, acceptance,
and personal courage that can be achieved in the stage of acceptance. Her rather
simple and facile view of dignity and how it could be obtained was embraced as a
source of comfort in a society that was becoming fearful of the indignities of
technological death. In many ways, the appeal of her message was directly
related to its simplicity and optimism. In short, it offered an uncomplicated
solution to a troubling and complicated problem.
The thrust of Kubler-Ross' message is two pronged. It stresses the humanistic
feat of achieving dignity throughout dying. It also argues that death is not the
cessation of life. Rather, it is the transition of life from earthly existence
to unearthly, spiritual life. In either event, however, her message offers
comfort. It facilitates control over death: either in its transformation of
dying into an opportunity for growth and dignity or in its resurrection of
physical death into a spiritual life -- eternity.
Both the humanistic and spiritual essence of her manifesto on death and dying
have had an enormous impact on shaping the thanatology revolution of the past
three decades. The publication of On Death and Dying, and the pictorial
interview in the November 20, 1969 issue of LIFE magazine catapulted Kubler-Ross
into fame and national attention. Personal appearances on television, coverage
in local and national newspapers and magazines including an interview in
Playboy, coupled with her charismatic personality and outstanding skills as a
communicator, quickly established her as the nation's leading authority on the
care of the dying. Although she was only minimally involved with hands-on-care
of dying patients and the development of hospice programs in America, the name
of Kubler-Ross became synonymous with death and dying. In recent history, she
has served as the dominant spokesperson for the needs of dying persons, and
served as a pioneering advocate for dignified death. It is fair to say that more
than anyone else, she has been responsible for the development of the death
awareness movement which systematically over the past thirty years has sought to
eliminate the long-standing cultural taboo about matters of suffering, dying,
and death.
Ironically, despite the fact that America was and remains suffering and death
aversive, the culture was ready for "Kubler-Ross' thanatology movement." In an
era of individualism, her view of death as a final stage of growth was
consistent with the broader cultural value of self-actualization. The human
potential movement, with its orientation toward therapeutic intervention and
personal transcendence, helped to set the stage for therapeutic management and
control of the dying process. It is in this way that hospices, while a direct
structural product of the death-awareness movement, are also a structural
reflection of the underlying American value of individualism and
self-actualization. Contrary to the life-prolonging focus of medicalized dying,
hospices seek palliative, humanistic, and spiritual alternatives. As a
philosophy and system of care, they seek to reclaim the solace and support that
were provided by the rituals and patterns of traditional ways of death.
The essential point to recognize is twofold. First, the denial of death
through relentless technological management of dying individuals is vastly
different in its approach, goals, and consequences than the forms of care sought
by the death-with-dignity, hospice movement. Second, despite their apparent
differences, each of these responses to the problem of death is driven by a
desire to control and manage the dying process. It is my contention that
technological intervention and the pursuit of dignity have both become new icons
and rituals of death control in the modern context. Just as traditional Western
society organized to make death palatable through community presence, religious
rituals, and cultural ceremonies, modern society seeks to master death through
patterns of control and governance that are consistent with broader folkways of
life; namely, technological reliance and therapeutic amelioration.
This
article is excerpted from Life's End, ©2000, by Baywood Publishing Co.,
Inc. Reprinted with permission of the publisher, Baywood Publishing Co, Inc.
www.baywood.com
Info/Order this book.
About the Author
 David
Wendell Moller teaches sociology in the School of Liberal Arts, where he is also
chair of the Program in Medical Humanities and Health Studies. Moller is a
faculty member of the Program in Medical Ethics at Indiana University School of
Medicine. His resolution to making death and dying less horrendous led him to a
position on faculty of the Palliative Care Program at Wishard Hospital, Indiana
University School of Medicine.
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